Research and Resource Articles
Click on a topic below to view research and other resource articles
Abortion
Grief After Termination of Pregnancy Due to Fetal Malformation (2004)
Prenatal Testing and Abortion: The Impact on Parents and Families (2016)
Abortion’s Impact on Prematurity: Closing the Knowledge Gap (2017)
Psychological Impact of Abortion due to Fetal Anomaly: A Review of Published Research (2017)
Is Abortion Justified After an Adverse Prenatal Diagnosis? (2018)
Edward’s Syndrome (Trisomy 18)
Fatally flawed? A review and ethical analysis of lethal congenital malformations (2012)
The Experience of Families with Children with Trisomy 13 and 18 in Social Networks (2012)
Trisomy 18 and Complex Heart Disease: Seeking the Threshold Benefit (2013)
Mortality and Morbidity of VLBW Infants with Trisomy 13 or Trisomy 18 (2014)
Survival of Children with Trisomy 13 and Trisomy 18: A Multi-State Population-Based Study (2016)
Parental Hopes, Interventions, and Survival of Neonates with Trisomy 13 and Trisomy 18 (2016)
Obstetricians’ Views on the Ethics of Cardiac Surgery for Newborns with Common Aneuploidies (2018)
Trisomy 18 Syndrome: An Ethical Dilemma in the Neonatal Intensive Care Unit (2018)
Patau Syndrome (Trisomy 13)
Fatally Flawed? A Review and Ethical Analysis of Lethal Congenital Malformations (2012)
The Experience of Families with Children with Trisomy 13 and 18 in Social Networks (2012)
Mortality and Morbidity of VLBW Infants with Trisomy 13 or Trisomy 18 (2014)
Parental Hopes, Interventions, and Survival of Neonates with Trisomy 13 and Trisomy 18 (2016)
Survival of Children with Trisomy 13 and Trisomy 18: A Multi-State Population-Based Study (2016)
Obstetricians’ Views on the Ethics of Cardiac Surgery for Newborns with Common Aneuploidies (2018)
Trisomy 18 Syndrome: An Ethical Dilemma in the Neonatal Intensive Care Unit (2018)
Prenatal Testing
NIPT/Cell Free DNA Screening Predictive Value Online Calculator
Systematic Review of the Literature: Parental Outcomes After Diagnosis of Fetal Anomaly (2011)
Prenatal Genetic Testing: When is it “Toxic Knowledge”? (2012)
The Portrayal of Down Syndrome in Prenatal Screening Information Pamphlets (2012)
Early-stage Embryos with Abnormalities May Still Develop into Healthy Babies (2016)
Supporting Women’s Autonomy in Prenatal Testing (2017)
Making Choices about Further Prenatal Testing for Fetal Aneuploidy (2019)
The Prevalence and the Adding Value of Fetal MRI Imaging in Midline Cerebral Anomalies (2020)